A recent national review by the Australian Coalition for Endometriosis has, for the first time, revealed a comprehensive picture of pelvic pain and endometriosis around Australia, finding the states and territories in which the problem of pain and access to information on pelvic pain, endometriosis and associated symptoms are most prevalent.
The analysis found that despite the high number of people suffering from debilitating period symptoms, the nation faces significant service and research gaps and the future of advancements in endometriosis care and research are at risk. The work demonstrates dramatic inequalities in information and support for people living with endometriosis around Australia.
Almost six in ten (57 per cent) of Australian Capital Territory respondents experience bowel or bladder pain – a rate significantly higher than other states and territories, with NT the next highest at 45 per cent.
Over half (53 per cent) of Tasmanian respondents report experiencing regular, severe period pain – the highest proportion of any state or territory. Tasmanian respondents also reported the highest rates of significant interference with their usual daily activities due to their periods. Nearly one-third (30 per cent) missed school or work because of their period.
Northern Territory respondents reported the next highest rate of interference in daily activity due to their periods, at 51 per cent.
Director of ACE, Jessica Taylor, said the statistics show that while one in nine people around Australia experiences pelvic and period pain, not everyone is adequately informed about endometriosis and has enough information to see effective treatment.
“The lack of information is just one part of the problem. The review also highlights the lack of access to information and support for people living with endometriosis around Australia.
“The Australian Coalition for Endometriosis is advocating for better information and treatment for people around the nation experiencing endometriosis and related pain. They aim to ensure that best practice is shared consistently around the nation and advocate for national recognition of the debilitating effects of endometriosis,” Taylor said.
Australia’s peak body for endometriosis and pelvic pain, The Australian Coalition fo Endometriosis, is calling for urgent action on the lack of services and research for people suffering from endometriosis and pelvic pain in Australia.